Watch out for flashing bunny ears

Watch out for flashing bunny ears

I would normally delete an out of focus or pixellated photograph like this one but I am sharing it because of the story behind it.

This is what anyone driving past Stoke Mandeville Hospital at about half past midnight last Sunday morning would have seen. About 500 ladies in pink tee-shirts most of them with flashing bunny ears on their heads. Continue reading “Watch out for flashing bunny ears”

It’s what Fathers are for

I had got to the supermarket 3 minutes before it closed last night to get in a stock of soft drink (quite a few cans, someway north of 200!) and fill the boot so that I could drive over to Dadford (appropriate name) first thing today. The stocks at #1 son’s catering venture needed replenishing. Home. Mowed the lawn. Lunch then over to Hazlemere before heading back to Dadford to collect a few items and finally on to #2 son’s after five hours on the road where he said “Happy Father’s Day” and gave me a card which read “DAD today is your day so sit back, relax . . . and enjoy!“. It was a nice card but “You’re taking the mickey” I said. Then home and unloaded the car and had a nap before it was time to wake up and go to bed.  Perhaps next year will be different.

Please vote for CCHF

To celebrate the 300th anniversary of the  United Grand Lodge of England, Freemasons have selected 300 local charities across England and Wales to receive a Masonic Charitable Foundation Community Award. Every charity that has been chosen will receive a Community Award of between £4,000 and £25,000. How much is given to each charity will be decided by a public vote. There are six charities in Buckinghamshire which have been chosen. One of them is the Cancer Care and Haematology fund (CCHF) which was founded in 1990 to raise money for the building of the Cancer Care and Haematology Unit at SMH (which was originally known as the ‘Wooden Spoon Unit’). It is the place where I went for chemotherapy and where I go both for oncology appointments and to check how my platelets are performing. The CCHF has continued to fundraise since to support the work of the Unit, to maintain it at the forefront of good care and innovation and to plan for growth in the future.

So I would be grateful if you could follow this link https://mcf.org.uk/region/buckinghamshire/  and vote. It is good that all of the charities will receive something however the vote pans out since the others are equally worthy – but perhaps we can try to make CCHF first among equals! The voting opened today and closes on 31 July.

Thanks for reading this, and hopefully thanks for voting – wherever you are in the world!

 

Steady as she volunteers

I saw my oncologist this week and it is “steady as she goes”. My latest PSA is 0.21 marginally up from the last reading of 0.15 but still crawling along the bottom of the graph. (I won’t talk percentages – it’s a 40%  increase, which sounds more scary than a 0.06 increase).

PSA combined

Apparently this week is  Volunteers Week so I thought I would share with you a piece written by a relative in Canada. He started by asking the question “Why do people volunteer?”. Continue reading “Steady as she volunteers”

Trip to pup

Liz was looking at the calendar and asked why I had put “Trip to pup” on it. Perhaps she thought something doggy was going on, but one large hairy rottweiler/german shepherd cross is enough. So I explained that it wasn’t “Trip to pup” but “Tripto top up”. In other words my three monthly triptorelin injection.  I am glad I cleared that up.

Back in the days when I used to toddle up to London on a daily basis the company I worked for was trying to licence a whole range of inventions, many of which came from universities or research institutes, to companies who would take them into production. Some of these were drugs like cephalasporin antibiotics  and other clever polywallywhatsits. (I dealt with engineering inventions which were much easier to spell but nothing to do with the story I am trying to tell.)

One of the polywallywhatsits was abiraterone acetate. Continue reading “Trip to pup”

Some musings on IT (I.T. not ‘it’)

Over this weekend most British Airway’s flights were cancelled because of an IT problem. A couple of weeks ago part of the NHS was paralysed because of ransomware infecting their IT systems. It all goes to show how reliant we have become on something that wasn’t even a subject when I was at school. You probably have more computing power in your mobile phone than the Apollo astronauts had when then journeyed to the moon (and back). Continue reading “Some musings on IT (I.T. not ‘it’)”

My platelets are better than yours

I saw a haematology consultant today and the good news is that my platelet count has continued to rise. It is now 116 which is still below the normal level of 150 plus but is heading in the right direction. If you look at a graph of my platelet scores there is a clear upward trend from the panic inducing level of 10 in September. Continue reading “My platelets are better than yours”