Home

A week or so ago we discussed the possibility of me going home with the medics. (I mean discussed with the medics, not going home with the medics). We had a long and serious discussion with the registrar who made it clear that the decision was up to me. The ward seemed to be full of people who would go home if their homes were suitable for them in their condition. Our house was suitable, it just needed some equipment, Liz wanted me home, I wanted me home, so the decision was easy.

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How things have changed

Just a few weeks ago I was able to walk and take care of myself but gradually I became less active with walking becoming more of a struggle. There was no obvious reason and we did not address it.

Then on the fateful Friday I collapsed. I am now lying on a bed with restricted movement. I can move my arms and head but sitting up is a challenge – I  can really only do that with the help of the bed. I can hardly move my legs which are very heavy. With assistance I can be dragged off the bed and stand up with support but not for long. Sitting anywhere (other than lying on the bed) is painful because of swollen accoutrements. Various bags empty various organs!

What I don’t understand is why. Apart from the reducing mobility I was finding eating difficult often throwing up and with no appetite. We’re these unrelated or not? What was lurking in the background but I had forgotten about was the prostate cancer. Was that the cause of all my ills?  Or how much was down to the pneumonia or sepsis or my diabetes going out of control?

Mixed news

I have been visited by various lovely people who are arranging for me to go home. A hospital bed will be set up in the lounge and I will have nurses coming in to help. Short term outlook improved long term who knows. More of that anon. The staff here at SMH have been brilliant. I will tell you more about the strange events that have affected me over the last few months another time.

Sadly perhaps 100yards away from me in a hospice the other side of the hospital my granddaughter’s other grandfather passed away last night. This is the granddaughter who was having her hair cut off for charity and she had managed to bring the haircut forward to tonight so that we both could see the result. Sadly it was not to be. But she kept her promise and her hair is a lot shorter! (I am not allowed to show photos). The cut off hair will be made into wigs for cancer sufferers while money she is raising will go to the Hospice and cancer research. I hope this will also provide some comfort for my granddaughters.

If you want to support them there is a link below or kind words (which I will pass on) are welcome.

https://uk.virginmoneygiving.com/ToniAddison

 

 

 

The broom cupboard

The other weekend is all a bit of a mystery to me from Friday morning onwards – at one point I thought I was in a storage closet except that among the clutter were a couple of beds. Oh this is where people go to die I thought before I drifted off.

Nearly a fortnight later I am lying down unable to get out of bed. It amazing how quickly you lose muscle tone and what difference fat legs make. I was weighed the other day and was almost 10kg heavier than normal. All liquid in my legs and elsewhere I think. This meant that I am very restricted on where I can put my legs etc. Then when I try to stand up I need the help of two physios or nurses and a frame or rotastand which I can hang on to to get from bed to chair or back. I shall have another go later but at least I’m not in the broom cupboard.

Flying ghost monkeys

I had been finding it more difficult to sit or stand for long but at least managed to get down to the Scout Hut to see it renamed after Richard Sherman who was the driving force behind fundraising and building the much used facility.
Meanwhile one of my legs had turned into a balloon so off to the Urgent Care Centre. Was it a DVT? Blood taken and heparin given. Next morning there was a lot of blood in my pee (or vice versa) so I managed to get a scan that day which showed no DVT. However there was concern about what might happening elsewhere so a CT scan was arranged. The good thing here was that it was combined with the one requested by my oncologist so I was able to bring that forward a week.

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Mildly Radioactive (Again)

Having been batted back to oncology from urology I fortunately had scheduled review imminent. I told my oncologist about the traumas of the past six months. He was of course aware of my raised PSA. He is a man with a calm and reassuring manner and a voice to match. As expected he added another tablet (bicalutamide) to my list and proposed a two scans so that he can get a better idea of what is happening. The first was a bone scan which I had last week. As before I went in to hospital for an injection of a radioactive tracer then home to drink plenty and let it do its work (gathering in hotspots in the bones). Three hours later it was back for the scan itself. Continue reading “Mildly Radioactive (Again)”