My sister and I have never spoken

A good post from journalist Victoria Scott. In case anyone should be confused by the headline I don’t have a sister but she does. As she says she and her sister have never spoken which does not mean that they can’t communicate.

Victoria Scott

Clare has Rett Syndrome, a rare neurological disorder affecting mostly girls. Clare has Rett Syndrome, a rare neurological disorder affecting mostly girls.

My sister and I have never spoken.

That’s not because we had a huge falling out as toddlers, or because I find her objectionable.

Clare never learned to speak. Well, she did utter a few words as a baby, I’m told, but lost the ability to form them almost as soon as they’d arrived.

I was a toddler then, so I’m unable to recall the sound of her voice. I often wonder what she’d sound like, and what she’d say if she could. Would she have chastised my teenage dress sense or told me my first boyfriend was a loser? Probably (she’d have been right on both counts.)

Clare has Rett Syndrome. It’s a genetic, non-hereditary disorder which mostly affects girls. As well as not speaking, she can’t walk, feed herself, and has no use of her hands.

Although she’s 36…

View original post 135 more words

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