My right leg had swollen up again and this time my left leg was trying to join it, Getting out of bed was increasingly exhausting and difficult. Liz rang the Ian Rennie nurse and discussed it. The upcome was that the Lymphodemia nurse from Florence Nightingale who came and gave me a pressure sock and put a pressure bandage on my upper leg, For those who don’t know Florence Nightingale is a hospice on the Stoke Mandeville site while Ian Rennie provides similar care in your own home. You may remember that we supported the Florence Nightingale midnight walk fundraiser.
I have told you that after a month in hospital I was allowed home with a package of carers and nurses put in place, but after being home for a week or so I went back with an infection. This seemed to be sorted so home again. A couple of weeks later and I was back with another infection. After loads of scans and blood tests they concluded that I had an abcess on my lung and was put on long term IV antibiotics. I couldn’t go home unless they found a tablet equivalent, which they did so I was able to go home.
What is particularly frustrating is having to rely on every one else for getting everything that is not within arms length. So I am having to spend time reading watching TV and writing. I have my laptop set up by the bed and have a small keyboard on my lap. So far have written my life story – something for the granddaughters to read one day (it’s only about 20 pages) although my brother-in-law has been lapping it up.
In addition to having to have everything within arms length I can only see things in front or the side of me; I have no idea what is happening behind me, Possibly the greatest annoyance has been that I have completely lost any strength in my legs, so with help I attempt to stand up by the bed a few times a day which is exhausting.
I had an appointment with the oncologist and an ambulance was ordered but then they discovered that the Cancer Unit cannot cope with patients on stretchers so I had a phone conversation with him. Also had conversations with the Ian Rennie and district nurses. A lot to mull over.
A week or so ago we discussed the possibility of me going home with the medics. (I mean discussed with the medics, not going home with the medics). We had a long and serious discussion with the registrar who made it clear that the decision was up to me. The ward seemed to be full of people who would go home if their homes were suitable for them in their condition. Our house was suitable, it just needed some equipment, Liz wanted me home, I wanted me home, so the decision was easy.